The Leukemia Institute is currently working on the development of patient guides designed to support people living with leukaemia or related disorders throughout their care journey.

The first four guides will cover the following conditions:

  • Acute myeloid leukaemia in adults (including acute promyelocytic leukaemia)
  • Acute lymphoblastic leukaemia in adults
  • Myelodysplastic syndromes (including chronic myelomonocytic leukaemia)
  • Myeloproliferative neoplasms (including chronic myeloid leukaemia)

These resources aim to address the questions patients and their families may have about the disease, providing clear and accessible information. From diagnosis to treatment, including everyday life with the disease, they will cover the different stages of the care journey to help patients better understand what to expect.

Through this project, the Leukemia Institute aims to provide patients and their families with reliable resources to help them better understand the disease and facilitate discussions with the healthcare professionals involved in their care.

Initially, the four guides will be printed and distributed to patients receiving care in the Leukemia Institute’s clinical departments.

They will also eventually be available for download from the Institute’s website.